Hi Jennifer, I hadn’t commented in a while, so saying hello. Despite what a difficult experience you are going through again, you somehow manage to find and document and share the humanity in each and every person you come across. Sending love.
Hi Jennifer. Great seeing you. Of note, in the world of Car-t therapy, when someone spikes a temperature or gets neurotoxicity during the process, it is scary ( needs close medical attention) but also viewed as positive. The process is affecting your body and hopefully killing the cancer. No idea if that is true with your process, but a more positive perspective. Our thoughts are with you and the Ts.
Jennifer, You are beyond brave and intrepid, and I join the legions of friends worldwide hoping this gets you the decades of health and full rich life that you deserve. And that you have earned!
Thank you for being so brave and trying this. It will help others to find a cure for this terrible disease. I lost one of my best friends to ovarian cancer. Perhaps you will be the one to find a cure. Hang in there, and enjoy the wedding
How frustrating that these providers have such extraordinary interest in documenting every detail and preventing liability and have so little interest in communicating with you and anticipating your needs. Some of the most difficult moments of my stem cell transplant were when I felt like I wasn’t being seen or acknowledged. I watched the Emma Thompson movie Wit while I was in the hospital, and it made me sob. Fortunately, most of my medical team was quite communicative and compassionate, but there were soul rending moments. I am hoping that as your trial progresses, they learn from experience and improve their processes and care for you. Of course, I’m also hoping for healing and relief.
I know it’s not a competition, but your hospital is way better-looking than mine. Hammersmith Hospital is a clutch of industrial-type buildings next to Wormwood Scrubs, one of London’s most notorious prisons. (I think both institutions share the same food catering.) Still, they’ve kept me alive for the last 20 months, so I’m not complaining. Your treatment sounded a bit brutal. I hope it gets easier — and of course works! People always tell us to “hang in there.” We should do more than that; we should walk, run, swim, dance, skate, and go hang-gliding! xxjb
keep on writing then....if you can't do ballet for the moment ! At least try to get the reason for
lack of anti-nausea meds from one of the kind nurses......Guinea pigs are resistant to a lot you know! Enjoy the weekend and the wedding...you'll make it.
Wishing you well. I read your post this Friday morning as my beloved is in hospital for monthly checkup on HER trial, which has gone well for six months. Earlier this week she had her bi-monthly scans... generally fine. There are a lot of science and many miracles out there. Hope we have left many on the table for you.
Please know that many, many, many of us are thinking of you every minute and praying for your strength and health to hold. I wish I was there to carry your bags, to help you on the train, to see you safely home. Thank you for sharing your story. Keep up the writing and perseverance. I know it ain't easy.
Hi Jennifer, I hadn’t commented in a while, so saying hello. Despite what a difficult experience you are going through again, you somehow manage to find and document and share the humanity in each and every person you come across. Sending love.
Sending hugs and wishing you strength.
Hi Jennifer. Great seeing you. Of note, in the world of Car-t therapy, when someone spikes a temperature or gets neurotoxicity during the process, it is scary ( needs close medical attention) but also viewed as positive. The process is affecting your body and hopefully killing the cancer. No idea if that is true with your process, but a more positive perspective. Our thoughts are with you and the Ts.
Jennifer, sending you love & strength from Berkeley.
Jennifer, You are beyond brave and intrepid, and I join the legions of friends worldwide hoping this gets you the decades of health and full rich life that you deserve. And that you have earned!
Thank you for being so brave and trying this. It will help others to find a cure for this terrible disease. I lost one of my best friends to ovarian cancer. Perhaps you will be the one to find a cure. Hang in there, and enjoy the wedding
Hold on dear one. We're all here loving you from afar, me in Pittsburgh, PA. Hugs
Glad you were able to get it started, despite these hassles. Hope you can get back in time for the wedding.
How frustrating that these providers have such extraordinary interest in documenting every detail and preventing liability and have so little interest in communicating with you and anticipating your needs. Some of the most difficult moments of my stem cell transplant were when I felt like I wasn’t being seen or acknowledged. I watched the Emma Thompson movie Wit while I was in the hospital, and it made me sob. Fortunately, most of my medical team was quite communicative and compassionate, but there were soul rending moments. I am hoping that as your trial progresses, they learn from experience and improve their processes and care for you. Of course, I’m also hoping for healing and relief.
I know it’s not a competition, but your hospital is way better-looking than mine. Hammersmith Hospital is a clutch of industrial-type buildings next to Wormwood Scrubs, one of London’s most notorious prisons. (I think both institutions share the same food catering.) Still, they’ve kept me alive for the last 20 months, so I’m not complaining. Your treatment sounded a bit brutal. I hope it gets easier — and of course works! People always tell us to “hang in there.” We should do more than that; we should walk, run, swim, dance, skate, and go hang-gliding! xxjb
keep on writing then....if you can't do ballet for the moment ! At least try to get the reason for
lack of anti-nausea meds from one of the kind nurses......Guinea pigs are resistant to a lot you know! Enjoy the weekend and the wedding...you'll make it.
Wishing you well with your new trial. I hope they will give you anti-nausea meds in the future and that you can get help with your travel.
Sending you so much healing love.
Wishing you well. I read your post this Friday morning as my beloved is in hospital for monthly checkup on HER trial, which has gone well for six months. Earlier this week she had her bi-monthly scans... generally fine. There are a lot of science and many miracles out there. Hope we have left many on the table for you.
Please know that many, many, many of us are thinking of you every minute and praying for your strength and health to hold. I wish I was there to carry your bags, to help you on the train, to see you safely home. Thank you for sharing your story. Keep up the writing and perseverance. I know it ain't easy.
I hope you make it home all right and especially that the time with Theo is good. Hugs! Ellen